Day 2 - 4 May

Theatre 5

Patient Information Forum

09.30 - 10.45  Improving the provision of health information and support to patients

9.30 - 9.40   Welcome and introduction
Chair: Mark Duman, Non-Executive Director,
Patient Information Forum
@PiFonline ; @MarkDuman

9.40 - 9.55    A patient perspective
Roberta Lovick

9.55 - 10.10   Putting patients in the driving seat: Personal Health Records
Claire Murray - Joint Head of Operations,
Patient Information Forum

What are personal health records (PHRs)? How can – and could – they be of value to patients, carers and clinicians? What opportunities and challenges do they provide for the future? @PiFonline

10.10 - 10.25  Making video work for you and your service users
Eleanor Stanley – Writer and Producer,
Stories for Health

Hear about why we believe film is such a powerful medium, and find out how your organisation and service users can get more from using video. @stories4health

10.25 - 10.35  Q&A

10.35 - 10.45  Sum up and close
Chair: Mark Duman, Non-Executive Director,
Patient Information Forum @PiFonline ; @MarkDuman


11:00 – 12:30 Digital excellence in health and care

Professionalism describes the standards of education and training that prepare members of a profession with the particular knowledge and skills necessary to perform their specific role within that profession. In other words – adequacy. A minimum fitness to practice. This session will explore what individuals have done to go beyond being simply adequate as a doctor, nurse, informatician or a patient, and tell their inspiring tales for how they have demonstrated excellence as digital practitioners, champions, leaders or educators. 


Tony Young, National Clinical Lead for Innovation, NHS England

Challenges felt (and overcome) by doctors to balance clinical and informatics/ service improvement skills development 

The doctors:
 Kit Latham, Founder of the Doctor’s Digital Collective

Sam Barclay, CCIO, Whittington Health NHS Trust and Junior Doctor 

The focus is on the nurses working in specialist roles within informatics and the value of nurses working or influencing informatics to support nursing/clinical practice   

The nurses: 
Ian Woodbourn, Chair, BCS Nursing 

Proof of concept work for NIB, bringing CHIME to the UK, developing a city-based approach to knowledge sharing, education and development 
The informaticians: 
Gareth Thomas, CCIO, Salford Royal NHS Foundation Trust
Julie Oxley, CIO, Leeds City Council
 Arjun Panesar, DiabetesUK and developer of the fantastic Diabetes UK low carb app

13:30 – 15:00: Building a learning health system
Connected Health Cities is a regionally focused programme to improve data collection, and information and knowledge creation, using the concept of “Learning Health Systems”. This session will describe the aims and objectives of the programme and look more closely at specific pieces of complementary work from the four sub-regional groups.


Nick Booth, Chief Information Officer, Connected Health Cities North East and North Cumbria, and the Great North Care Record, Newcastle University

Learning health systems - from data to practice
Traditionally, there has been a very long lag between the development of evidence and its translation into practice. The advent of Electronic Health Records and Data Analytics offer the promise of more timely results. Unfortunately, even when these innovations are used to generate new knowledge, the results are often disseminated slowly via traditional journal articles that are read by only a few people and take many years to alter practice. This session will explore some of the methods that could be used to speed the translation into practice, enabling a Learning Health System.
Dr Thomas Foley, Institute for Health Society, Newcastle University

Team science: collaborate, share, reproduce and repeat
Data science is a digital discipline, generating many digital assets a part of the process that may contain assumptions, decisions and often hard-won knowledge. However these digital assets are rarely published as part of a paper or disseminated in any form. This is a missed opportunity to create a science that is completely open and transparent. This talk will explore the opportunity and challenges to make data science reproducible, repeatable, enabling collaboration and knowledge reuse.
Professor John Ainsworth, Professor of Health Informatics, University of Manchester and Director, Connected Health Cities Programme

The SILVER project - making data available to improve care for vulnerable families using collaborative privacy 
SILVER (Smart Interventions for Local Vulnerable Families), one of the four Connected Health Cities care Pathway projects, aims to develop a Learning Health System for Vulnerable Families building on a personalised citizen record of linked data. Through an integrated data system, we aim to co-produce with families and key workers a care improvement intervention package SILVER: Smart Interventions for Local Vulnerable Families. The intervention will be an E-platform that will use data from health, criminal justice and social care, to inform the day to day practice of key workers dealing with families currently involved with the UK “Troubled Families Programme”.
Dr Raghu Lingman, Clinical Senior Lecturer in Epidemiology and Child Health, Newcastle University and an Honorary Consultant Community Paediatrician, Great North Children’s Hospital, Newcastle

Technology adopted in NW Coast to achieve a LHS
This talk will describe the infrastructure architecture developed as part of the Connected Health Cities project in the Northwest Coast region. The presentation will focus upon the data security and governance issues associated with building, at scale, learning health data storage and processing infrastructure.
Dennis F Kehoe, Chief Executive Officer, AIMES

Using the electronic Frailty Index to develop and test innovative care pathways in Connected Yorkshire
The eFI has now been implemented into the SystmOne and EMISWeb EHRs and a community of improvement established through the Yorkshire & Humber AHSN Improvement Academy Healthy Ageing Collaborative. The eFI is included as a recommended tool in the 2016 NICE Multimorbidity Guideline, and won the 2016 EHI award for Healthcare Innovation IT Product of the Year. The eFI is incorporated as a central component of Connected Yorkshire, and Andy will discuss how it is being used in the programme to develop and test new care pathways for older people with frailty.
Andy Clegg, Senior Lecturer, Academic Unit of Elderly Care & Rehabilitation, University of Leeds, and a Consultant Geriatrician, Bradford Royal Infirmary, based at the Bradford Institute for Health Research